Monday, April 30, 2012
Etiquette- Do's & Don'ts & a look inside PCOS emotions
Here is some thoughts to read on if you THINK you understand Infertility but YOU DONT suffer from it!
Infertility Etiquette
Read and DO!
And please next time you judge that fat girl laced with acne on her face, hair falling out, and if you get close enough to see facial hair WATCH yourself- Those are ALL part of this NASTY disease that THEY CANNOT HELP!!! It's all in the hormone mix!
do you want to understand what a girl with PCOS deals with?! Do you want to see how painful it is?
Watch this..... copy & paste the link!
http://youtu.be/rM4nIYvZ7sU
This is exactly what its like.... a roller coaster that we can only one day hope ends happy & soon!
That's all for today!
Sunday, April 29, 2012
IVF Broken Down
This link pretty much sums it all up! Click to read if you choose IVF DETAILS!
10lb weight gain in 3-5 days- REALLY?! Give me a break!
PRICE!!!! Highest is $15K lowest is $7500! Insurance DOES cover THANK GOD!!!
Payment plans are available, I want to say coverage is usually 50-80% and these totals do include EVERYTHING. Now $7500 is likely JUST the IVF section, not the daily ultrasound monitoring, bloodwork, injection meds, HCG shot, progesterone ETC!
Monday, April 23, 2012
Exciting News Gives Hope!
I have been watching these guys for YEARS!!! I have prayed for them like crazy!!!! I know exactly what they are going through- but not ALL of it-cancer was quite the curveball she was thrown. Scary stuff!!!
I am soooo happy to hear their good news that the are FINALLY having a baby!!!! They are having one through a gestational carrier, because Giuliana is unable to hold a baby, take on the fertility medicine with having just gotten rid of cancer.
Check out People.com, or twitter for all the deets- the video of when they got the news!!!! They have a little one due here in late summer.
So lets see... this leaves me still left but this also gives me hope... since IVF is up next and if that fails, I guess I do have another option :) Crazy as it may be... we shall see what the future holds for us.
It also happens to be infertility awareness week- crazy timing right?!?! I read this article today:
http://fitbottomedmamas.com/2012/04/lets-talk-about-the-hard-stuff-national-infertility-awareness-week/
Still can't believe I'm on of these people. I wake up somedays thinking... it's a joke right?! This isn't really happening right?!?!
But here's the thing... if you know me- I am a PROACTIVE-GO GETTER!!! I dont own my own successful business for NOTHING!!! I WORK HARD, I walk through FIRES like none other. I've walked through MANY so far. The curveballs I've been thrown have been unreal, but I've also been blessed with a pretty awesome life if I must say so :) Can't complain!!! Just wanna have some littles to join this world and complete it!!! That being said- I think we ALL know I will likely walk through whatever FIRE i have to to get them here... Is Hal reading this?! ha!!! He wants some littles too- so I'm gonna speak for him and say he's on board with me!
We will get there... we may have to fight and walk through a lot of fire. But we will not let this disease own us. I wont anyway... I'm going to have negative days... it is what it is- rollercoaster- no getting around that. So I will have my days- but I likely wont stop- I wont stop till I'm dead. I'm pretty sure of it.
I hope Hal is ready :) He's worked hard all his life and now he's experiencing a crazy journey in life with the cards we've been handed. Makes you appreciate your kids A WHOLE LOT MORE!
Those of you who have them- take care of them, don't abuse them, don't take advantage of them, they are a blessing and deserve the best. Dont EVER look at them like they invaded your time, your life etc I have had to work SO hard to get some, and still dont have any. Know how blessed you are to be naturally given one, two, three or however many you have.
That is all for today.
Sunday, April 22, 2012
Round 5, Exercise & MULTIPLES?!??!
Moving onto Round 5!
Yet again the doc was NOT happy with Femara/Letrozole.... and well I think round 5, perhaps this is round 6. Who knows I lost count. Have I discussed Clomid yet?!
Okay let me sum it up!
So Dr Roth was NOT happy with the last round of 7.5 mg of Letrozole/Femara. It was my first IUI experience- which mind you I paid CASH for. You can't always get the procedure covered- you need a certain amount of good ovulation rounds and well lets face it- I RARELY get a good round.... my progesterone level came back at 4.5- honestly? What is the deal ? Why oh why is this happening to me!!! He officially took me off Letrozole/Femara and moved me to Clomid- the high dose too! 150mg right away!!! It was bigger pills, and more!
We started the monitoring... the follicles... which are what are forced to grow- because without a mature follicle, the egg will be too small and if it releases- which it should-but with PCOS it doesn't always (enter in HCG shot). OF COURSE growth DID NOT happen. Why would it?!?!
So I went in on CD 14 it was Monday- I had just started Les Mills Pump the workout program! I was STOKED! I had graduated P90X that Friday before and now I was onto the next program. I had leaned out and felt great in this process. Honestly sweat is all I can do to keep me sane!!! It helps a TON!
I got my results that nothing was happening- the follicles were not growing... I sat in his office listening to his voice not happy about what he was seeing in the ultrasound shots and I was thinking ... dear lord why... so he looked up and said yeah... your body is not responding. Okay doc so injections with IUI are next right? (thinking in my mind this is what I'm going to hear....) Dr. Roth looks up and says next up will be injections with IVF. 'Excuse me?! what?!' I nearly fell out of my chair- did I just hear him, did he just say IVF?!?! He meant IUI right?! It's Monday- we're tired. I get it. 'You meant IUI right?'
'No InVITRO Fertilization!' 'Are you okay w/ injection medicine?'' ummmm do I have a choice?
Seriously?!?!?! Am I SERIOUSLY at IN VITRO FERTILIZATION!?!?!??!
Is this REALLY HAPPENING RIGHT NOW!??!?!
So I said 'perhaps my exercise is the reason this is failing...' 'Well what exactly do you do when you exercise?' he asked... 'Um I just graduated P90X.' WHAT!!!! He said no more exercise!!! I thought you were going to the gym and just doing some stuff... 'um EXCUSE me I'm a fitness coach...what do you think I am doing?!?!' HELLO!!! He totally knows what I do!!! So I am on exercise hault- I get 3X a week 30 min cardio... dear lord in heaven please oh PLEASE!!! I want my Turbo back!!! At least!!! I wanted to do PUMP so bad!!! I just wanna sweat!!!!! I miss weight lifting, I miss it all- hard as it is!!! I MISS IT!!!!
Okay I believe God has a plan and everything happens for a reason. I believe God answers EVERY prayer you ask of him... he wants the best for us all. Whatever your heart desires, he fufills.... SOOOOOO God what is GOING ON!?!?!??!
Yep... here we are IVF. Coming up on deck next! The doc scrapped the rest of this cycle and is waiting for me to get a period to start fresh and do IVF. Plus limited exercise :(
Perhaps God wants me to have more than 1 baby at once? Twins? Triplets? eeek that is something else!
I do not know what the plan for me is. I really dont. I wish I could read some book or see a video that shows me this part of my future. This is super painful... it really is.
Nobody understands unless they have been in my shoes. Even Hal doesn't understand- he feels it- but he's not there with me for all the appointments. He is feeling it for sure.... he wants 2 babies so bad, 2 healthy babies- honestly boys if he could have it his way... That's all we ask- just 2 healthy babies please. is that too much to ask? did we do something wrong in our life to get in this position? As if we have thousands of dollars on hand to afford these constant treatments.
Well here's to a successful IVF coming up! I obviously will keep you posted as it begins! I believe 1st week in May we start. Exciting, Scary, all in one!
I pray nobody deals with this kind of pain EVER.
Tuesday, April 17, 2012
Sharing your story is POWERFUL Rancics
Thursday, April 12, 2012
Round 4 Begins
Wednesday, April 11, 2012
Round 3 Starts
What is PCOS?
Polycystic Ovary Syndrome (PCOS) - Topic Overview- Womens WebMD
What is polycystic ovary syndrome (PCOS)?
Polycystic ovary syndrome (say "pah-lee-SIS-tik OH-vuh-ree SIN-drohm") is a problem in which a woman’s hormones are out of balance. It can cause problems with your periods and make it difficult to getpregnant. PCOS may also cause unwanted changes in the way you look. If it is not treated, over time it can lead to serious health problems, such as diabetes andheart disease.
Polycystic ovary syndrome (or PCOS) is common, affecting as many as 1 out of 15 women. Often the symptoms begin in the teen years. Treatment can help control the symptoms and prevent long-term problems.
What are hormones, and what happens in PCOS?
Hormones are chemical messengers that trigger many different processes, including growth and energy production. Often, the job of one hormone is to signal the release of another hormone.
For reasons that are not well understood, in PCOS the hormones get out of balance. One hormone change triggers another, which changes another. For example:
- The sex hormones get out of balance. Normally, the ovaries make a tiny amount of male sex hormones (androgens). In PCOS, they start making slightly more androgens. This may cause you to stop ovulating, get acne, and grow extra facial and body hair.
- The body may have a problem using insulin, called insulin resistance. When the body doesn't use insulin well, blood sugar levels go up. Over time, this increases your chance of getting diabetes.
What are the symptoms?
Symptoms tend to be mild at first. You may have only a few symptoms or a lot of them. The most common symptoms are:
- Acne.
- Weight gain and trouble losing weight.
- Extra hair on the face and body. Often women get thicker and darker facial hair and more hair on the chest, belly, and back.
- Thinning hair on the scalp.
- Irregular periods. Often women with PCOS have fewer than nine periods a year. Some women have no periods. Others have very heavy bleeding.
- Fertility problems. Many women who have PCOS have trouble getting pregnant (infertility).
- Depression.
Most women with PCOS grow many small cysts on their ovaries. That is why it is called polycystic ovary syndrome. The cysts are not harmful but lead to hormone imbalances.
What causes PCOS?
The symptoms of PCOS are caused by changes in hormone levels. There may be one or more causes for the hormone level changes.
PCOS seems to run in families, so your chance of having it is higher if other women in your family have PCOS, irregular periods, or diabetes. PCOS can be passed down from either your mother's or father's side.
How is PCOS diagnosed?
To diagnose PCOS, the doctor will:
- Ask questions about your past health, symptoms, and menstrual cycles.
- Do a physical exam to look for signs of PCOS, such as extra body hair and high blood pressure. The doctor will also check your height and weight to see if you have a healthy body mass index (BMI).
- Do a number of lab tests to check your blood sugar, insulin, and other hormone levels. Hormone tests can help rule out thyroid or other gland problems that could cause similar symptoms.